Every Child Now Conference: Breaking Barriers: Parenting a Child with Severe Disabilities in West Virginia

Learn about the barriers I encountered in West Virginia as a mother of a child with FOXG1 Syndrome, a severe disability, as we navigated a disjointed system. Learn about the ongoing advocacy and activism efforts it takes to ensure my son’s medical needs are met. In sharing my story, I hope to shed a light on disability and the changes we can make to ensure that children with disabilities not only have their medical needs met, but that they thrive in the Mountain State.

The EveryChild NOW Annual Conference brings together 300+ changemakers from across West Virginia for two days of learning, connection, and collective action focused on improving outcomes for children and families. Leaders across education, health, economy, neighborhood, and community sectors will share proven programs, practical strategies, and partnership-driven solutions that are making real impact—so attendees leave ready to grow good in their own communities.